CF INFO

About Cystic Fibrosis

Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. At present, there is no cure. CF causes various effects on the body, but mainly affects the digestive system and lungs. The degree of CF severity differs from person to person, however, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, will eventually lead to death in the majority of people with CF.
 
More than 4,300 Canadian children, adolescents, and adults with cystic fibrosis attend specialized CF clinics.


Many of those Canadians now have access to life-changing medicines that target a common mutation in the gene linked to the disease. It’s been transformational. But not everyone is able to benefit from these medicines and they’re not a cure. 


About Cystic Fibrosis Canada

Founded by parents in 1960, Cystic Fibrosis Canada (CF Canada) has grown into a leading CF organization. Their central role is to engage people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. CF Canada helps to change the lives of people living with CF and their work has contributed to global CF knowledge, funding research, and advancing access to life-changing CF medicines in Canada through advocacy and government-relations work.


Together with its supporters, CF Canada has helped to advance research and care that has more than doubled the life expectancy of people living with cystic fibrosis. But they are far from done. CF Canada still needs our support/your support, because as powerful and positive as the story is, half of the Canadians living with cystic fibrosis who died over the past five years were under the age of 37. CF Canada wants to change that. One of the ways they are doing that is through a new, ambitious approach to funding research. One that will focus on priority needs identified by the Canadian CF community, will bring impact to people faster and will support some of the greatest scientific minds to fuel innovation. 


Over the last 60 years, Cystic Fibrosis Canada has come so far in helping people live healthier lives. Today, we continue supporting CF Canada and we’re pledging to go further for CF. This means pushing beyond boundaries and going outside our comfort zone to help drive life-altering change for people impacted by CF. Every child, parent, and individual living with CF must push through challenges every day, that are unimaginable to most. For them, we push further. For Canadians living with CF, life is still challenging and still too short.
 
Donors, fundraisers, and supporters of CF Canada, including you, have already done so much to go further for people living with cystic fibrosis. In 2023, and beyond, CF Canada and supporters like us/ you are building on this momentum and going further together.

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